Parent & Caregiver Survey – Rett Syndrome
At Cadence Communications & Research, we believe the experiences of parents and caregivers are essential to understanding what it means to support a child or young adult living with a disability. We invite parents and caregivers of individuals living with Rett Syndrome to share their experiences by participating in this research.
Why Participate?
Parents and caregivers make decisions every day about their loved one’s safety, well-being, opportunities, and experiences.
We are conducting a 15-minute online survey to better understand the experiences of parents and caregivers of children and young adults living with Rett Syndrome, including how families approach opportunities to try new things and balance safety with happiness, independence, and quality of life.
By participating, you’ll have the opportunity to share your experiences and perspectives as a parent or caregiver. Your responses will contribute to a broader understanding of the experiences of families affected by Rett Syndrome.
Your individual responses will remain confidential, and research findings will be reported in aggregate.
Your Voice Matters
Every family’s experience is different. By sharing yours, you can help us better understand the real-world experiences, considerations, and challenges that parents and caregivers navigate while supporting someone living with Rett Syndrome.
Qualified participants who complete the 15-minute online survey will receive a $50 honorarium as a thank you for their time and insights.
If you are interested in participating, please click the link or scan the QR code below to complete a brief qualification screener. Participants must qualify for the research and complete a brief identity verification process before participating in the full survey.
Identity verification helps us protect the integrity of the research and ensure that honoraria are provided to verified, eligible participants. Your identity verification information is used only for verification purposes and is not included with your survey responses.
